About Dana's Angels Research Trust
Dana’s Angels Research Trust is a non-profit organization that funds research into a rare disease, Niemann-Pick type C (NPC), a fatal, cholesterol-storage disease affecting children. Two of the Marella’s four children, Dana and Andrew, were afflicted by NPC. Most children who suffer from NPC die in their early teens, but DART has helped change that fate. As an all-volunteer organization, over 95% of the funds expended are channeled directly into supporting pivotal NPC research; research that may also help millions of people suffering from HIV/Aids, Ebola, heart disease, stroke, Alzheimer’s disease and other disorders that appear to be related to cholesterol.
Sadly, the Marella’s daughter, Dana, 19, passed away in the Summer of 2013. When Dana died, she was confined to a wheelchair, no longer talked, suffered from frequent pneumonia and required constant care, but she always had a smile on her face and was an inspiration to many, both here and around the world. The Marella’s youngest child, Andrew, who turns 24 on June 3, 2023, is relatively stable right now, although with the passing of his sister, Andrew struggles with seizures. Andrew has benefited from two experimental medications, all due in large part to the supporters of DART.